The Resource Big data, health law, and bioethics, edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser

Big data, health law, and bioethics, edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser

Label
Big data, health law, and bioethics
Title
Big data, health law, and bioethics
Statement of responsibility
edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser
Contributor
Editor
Subject
Language
eng
Summary
"When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt healthcare (and the healthcare system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the healthcare sphere, as well as what we can learn from other sectors."--
Assigning source
Back cover
Cataloging source
DNLM/DLC
Illustrations
illustrations
Index
index present
LC call number
RA425
LC item number
.B54 2018
Literary form
non fiction
Nature of contents
bibliography
NLM call number
W 26.55.I4 C678b 2018
http://library.link/vocab/relatedWorkOrContributorDate
1972-
http://library.link/vocab/relatedWorkOrContributorName
  • Cohen, I. Glenn
  • Lynch, Holly Fernandez
  • Vayena, Effy
  • Gasser, Urs
http://library.link/vocab/subjectName
  • Data mining
  • Computational biology
  • Big data
  • Medical informatics
  • Medical records
  • Data Mining
  • Health Policy
  • Legislation, Medical
  • Bioethical Issues
  • Privacy
  • United States
  • Big data
  • Data mining
  • Medical records
Label
Big data, health law, and bioethics, edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser
Instantiates
Publication
Bibliography note
Includes bibliographical references and index
Carrier category
volume
Carrier category code
  • nc
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • The future of pharmacovigilance : big data and the False Claims Act
  • Efthimios Parasidis
  • Big data's new discrimination threats : amending the Americans with Disabilities Act to cover discrimination based on data-driven predictions of future disease
  • Sharona Hoffman
  • Who's left out of big data? How big data collection, analysis, and use neglects populations most in need of medical and public health research and interventions
  • Sarah E. Malanga, Jonathan D. Loe, Christopher T. Robertson, Kenneth S. Ramos
  • Potential roadblocks in healthcare big data collection : Gobeille v. Liberty Mutual, ERISA, and all-payer claims databases
  • Carmel Shachar, Aaron S. Kesselheim, Gregory Curfman, Ameet Sarpatwari
  • Avoiding overregulation in the medical Internet of things
  • Dov Greenbaum
  • Big data and individual autonomy in a crowd
  • Data policy for Internet of things healthcare devices : aligning patient, industry, and privacy goals in the age of big data
  • Marcus Comiter
  • Thought-leader perspectives on risks in precision medicine research
  • Laura M. Beskow, Catherine M. Hammack, Kathleen M. Brelsford, Kevin C. McKenna
  • From individual to group privacy in biomedical big data
  • Brent Mittelstadt
  • Big data and informed consent : the case of estimated data
  • Donna M. Gitter
  • Is there a duty to share healthcare data?
  • I. Glenn Cohen
  • Barbara J. Evans
  • Societal lapses in protecting individual privacy, the common rule, and big data health research
  • Laura Odwazny
  • The common rule and research with data, big and small
  • Liza Dawson
  • Big data, HIPAA and the common rule : time for big change?
  • Margaret Foster Riley
  • Data sharing that enables post-approval drug and device research and protects patient privacy : best practice recommendations
  • Ameet Sarpatwari, Bradley A. Malin, Aaron S. Kesselheim, Joshua J. Gagne, Sebastian Schneeweiss
  • Big data and human medical judgment : regulating next-generation clinical decision support
  • Jeffrey M. Senger, Patrick O'Leary
  • Big data's epistemology and its implications for precision medicine and privacy
  • Medical malpractice and black-box medicine
  • W. Nicholson Price II
  • Big data & intellectual property rights in the health and life sciences
  • Timo Minssen, Justin Pierce
  • The pathologies of data-generating patents
  • Ted Sichelman, Brenda M. Simon
  • Jeffrey M. Skopek
  • Correlation vs. causation in health-related big data analysis : the role of reason and regulation
  • Tal Z. Zarsky
  • Big data and regulatory arbitrage in healthcare
  • Nicolas P. Terry
Dimensions
23 cm
Extent
xvii, 354 pages
Isbn
9781108449670
Lccn
2017041362
Media category
unmediated
Media MARC source
rdamedia
Media type code
  • n
Other physical details
illustrations
System control number
  • (OCoLC)1002290923
  • (OCoLC)on1002290923
Label
Big data, health law, and bioethics, edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser
Publication
Bibliography note
Includes bibliographical references and index
Carrier category
volume
Carrier category code
  • nc
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • The future of pharmacovigilance : big data and the False Claims Act
  • Efthimios Parasidis
  • Big data's new discrimination threats : amending the Americans with Disabilities Act to cover discrimination based on data-driven predictions of future disease
  • Sharona Hoffman
  • Who's left out of big data? How big data collection, analysis, and use neglects populations most in need of medical and public health research and interventions
  • Sarah E. Malanga, Jonathan D. Loe, Christopher T. Robertson, Kenneth S. Ramos
  • Potential roadblocks in healthcare big data collection : Gobeille v. Liberty Mutual, ERISA, and all-payer claims databases
  • Carmel Shachar, Aaron S. Kesselheim, Gregory Curfman, Ameet Sarpatwari
  • Avoiding overregulation in the medical Internet of things
  • Dov Greenbaum
  • Big data and individual autonomy in a crowd
  • Data policy for Internet of things healthcare devices : aligning patient, industry, and privacy goals in the age of big data
  • Marcus Comiter
  • Thought-leader perspectives on risks in precision medicine research
  • Laura M. Beskow, Catherine M. Hammack, Kathleen M. Brelsford, Kevin C. McKenna
  • From individual to group privacy in biomedical big data
  • Brent Mittelstadt
  • Big data and informed consent : the case of estimated data
  • Donna M. Gitter
  • Is there a duty to share healthcare data?
  • I. Glenn Cohen
  • Barbara J. Evans
  • Societal lapses in protecting individual privacy, the common rule, and big data health research
  • Laura Odwazny
  • The common rule and research with data, big and small
  • Liza Dawson
  • Big data, HIPAA and the common rule : time for big change?
  • Margaret Foster Riley
  • Data sharing that enables post-approval drug and device research and protects patient privacy : best practice recommendations
  • Ameet Sarpatwari, Bradley A. Malin, Aaron S. Kesselheim, Joshua J. Gagne, Sebastian Schneeweiss
  • Big data and human medical judgment : regulating next-generation clinical decision support
  • Jeffrey M. Senger, Patrick O'Leary
  • Big data's epistemology and its implications for precision medicine and privacy
  • Medical malpractice and black-box medicine
  • W. Nicholson Price II
  • Big data & intellectual property rights in the health and life sciences
  • Timo Minssen, Justin Pierce
  • The pathologies of data-generating patents
  • Ted Sichelman, Brenda M. Simon
  • Jeffrey M. Skopek
  • Correlation vs. causation in health-related big data analysis : the role of reason and regulation
  • Tal Z. Zarsky
  • Big data and regulatory arbitrage in healthcare
  • Nicolas P. Terry
Dimensions
23 cm
Extent
xvii, 354 pages
Isbn
9781108449670
Lccn
2017041362
Media category
unmediated
Media MARC source
rdamedia
Media type code
  • n
Other physical details
illustrations
System control number
  • (OCoLC)1002290923
  • (OCoLC)on1002290923

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