The Resource Ethics and newborn genetic screening : new technologies, new challenges, edited by Mary Ann Baily and Thomas H. Murray

Ethics and newborn genetic screening : new technologies, new challenges, edited by Mary Ann Baily and Thomas H. Murray

Label
Ethics and newborn genetic screening : new technologies, new challenges
Title
Ethics and newborn genetic screening
Title remainder
new technologies, new challenges
Statement of responsibility
edited by Mary Ann Baily and Thomas H. Murray
Contributor
Subject
Language
eng
Cataloging source
DNLM/DLC
Index
index present
LC call number
RJ255.6.D55
LC item number
E84 2009
Literary form
non fiction
Nature of contents
bibliography
NLM call number
  • 2009 G-247
  • WS 200
NLM item number
E84 2009
http://library.link/vocab/relatedWorkOrContributorDate
1946-
http://library.link/vocab/relatedWorkOrContributorName
  • Baily, Mary Ann
  • Murray, Thomas H.
http://library.link/vocab/subjectName
  • Genetic disorders
  • Newborn infants
  • Genetic screening
  • Genetic Diseases, Inborn
  • Neonatal Screening
  • Genetic Testing
  • Health Policy
  • Infant, Newborn
  • Screening
  • Pasgeborenen
  • Aangeboren afwijkingen
  • Diagnose
  • Dilemma's
  • Ethische aspecten
  • Bio-ethiek
  • Neugeborenes
  • Genanalyse
  • Reihenuntersuchung
  • Ethik
  • Neugeborenenkrankheit
  • Erbkrankheit
  • Reihenuntersuchung
  • Medizinische Ethik
  • Gesundheitspolitik
Label
Ethics and newborn genetic screening : new technologies, new challenges, edited by Mary Ann Baily and Thomas H. Murray
Instantiates
Publication
Bibliography note
Includes bibliographical references and index
Contents
  • Lessons to be learned from the move toward expanded newborn screening
  • Ellen Wright Clayton
  • State newborn screening advisory committees : how programs introduce public participation into decision making
  • Bruce Jennings and Andrea Bonnicksen
  • Racial/ethnic communities and newborn screening policies
  • Toby Citrin and Stephen M. Modell --
  • Fair distribution of newborn screening costs and benefits
  • Mary Ann Baily
  • Cost-effectiveness as a criterion for newborn screening policy decisions
  • Scott D. Grosse
  • An advocate's perspective on newborn screening policy
  • Jannine De Mars Cody
  • Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy
  • Lainie Friedman Ross
  • Parental permission for research in newborn screening
  • Jeffrey R. Botkin
  • Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program
  • Anne Marie Comeau and Donna E. Levin
  • Ethical and policy implications of conducting carrier testing and newborn screening for the same condition
  • Benjamin S. Wilfond
  • What can we do to shape the future of newborn screening? : conclusions and recommendations
  • Mary Ann Baily and Thomas H. Murray
  • The role of the federal government in supporting state newborn screening programs
  • Michele A. Lloyd-Puryear ... [et al.]
  • What is the role for evidence-based decision making in expanded newborn screening?
  • Virginia A. Moyer ... [et al.]
  • Research for newborn screening : developing a national framework
  • Jeffrey R. Botkin
  • Ethical and policy issues involving research with newborn screening blood samples
  • Karen J. Maschke
Dimensions
24 cm.
Extent
xvi, 354 p.
Isbn
9780801891519
Lccn
2008033831
System control number
  • (OCoLC)237195221
  • (OCoLC)ocn237195221
Label
Ethics and newborn genetic screening : new technologies, new challenges, edited by Mary Ann Baily and Thomas H. Murray
Publication
Bibliography note
Includes bibliographical references and index
Contents
  • Lessons to be learned from the move toward expanded newborn screening
  • Ellen Wright Clayton
  • State newborn screening advisory committees : how programs introduce public participation into decision making
  • Bruce Jennings and Andrea Bonnicksen
  • Racial/ethnic communities and newborn screening policies
  • Toby Citrin and Stephen M. Modell --
  • Fair distribution of newborn screening costs and benefits
  • Mary Ann Baily
  • Cost-effectiveness as a criterion for newborn screening policy decisions
  • Scott D. Grosse
  • An advocate's perspective on newborn screening policy
  • Jannine De Mars Cody
  • Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy
  • Lainie Friedman Ross
  • Parental permission for research in newborn screening
  • Jeffrey R. Botkin
  • Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program
  • Anne Marie Comeau and Donna E. Levin
  • Ethical and policy implications of conducting carrier testing and newborn screening for the same condition
  • Benjamin S. Wilfond
  • What can we do to shape the future of newborn screening? : conclusions and recommendations
  • Mary Ann Baily and Thomas H. Murray
  • The role of the federal government in supporting state newborn screening programs
  • Michele A. Lloyd-Puryear ... [et al.]
  • What is the role for evidence-based decision making in expanded newborn screening?
  • Virginia A. Moyer ... [et al.]
  • Research for newborn screening : developing a national framework
  • Jeffrey R. Botkin
  • Ethical and policy issues involving research with newborn screening blood samples
  • Karen J. Maschke
Dimensions
24 cm.
Extent
xvi, 354 p.
Isbn
9780801891519
Lccn
2008033831
System control number
  • (OCoLC)237195221
  • (OCoLC)ocn237195221

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