The Resource Privacy, confidentiality, and health research, William W. Lowrance, (electronic resource)

Privacy, confidentiality, and health research, William W. Lowrance, (electronic resource)

Label
Privacy, confidentiality, and health research
Title
Privacy, confidentiality, and health research
Statement of responsibility
William W. Lowrance
Creator
Subject
Genre
Language
eng
Summary
The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward
Member of
Cataloging source
IDEBK
http://library.link/vocab/creatorDate
1943-
http://library.link/vocab/creatorName
Lowrance, William W.
Index
index present
LC call number
R858
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
NLM call number
  • 2012 G-801
  • W 84.3
Series statement
Cambridge bioethics and law
http://library.link/vocab/subjectName
  • Medical informatics
  • Information storage and retrieval systems
  • Medical records
  • Health services accessibility
  • Health Services Research
  • Privacy
  • Computer Security
  • Confidentiality
  • Confidentiality
  • Databases, Factual
  • Health Services Research
Label
Privacy, confidentiality, and health research, William W. Lowrance, (electronic resource)
Instantiates
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references and index
Color
multicolored
Contents
Cover; Privacy, Confidentiality, and Health Research; Series; Title; Copyright; Dedication; Contents; Preface and acknowledgments; 1: Introduction; Health research as a public-interest cause; Privacy protection as a public-interest cause; Health data vulnerability; The challenges; 2: Data, biospecimens, and research; A few essential notions; The e-health revolution; Data and databases; Biospecimen collections; Public research resource platforms; Degrees of sensitivity; Data and biospecimen ownership; What is research, anyway?; 3: Privacy, confidentiality, safeguards; Privacy; Confidentiality
Dimensions
unknown
Extent
1 online resource.
File format
unknown
Form of item
online
Isbn
9781139107969
Level of compression
unknown
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
  • (OCoLC)795895647
  • (OCoLC)bopeb795895647
Label
Privacy, confidentiality, and health research, William W. Lowrance, (electronic resource)
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references and index
Color
multicolored
Contents
Cover; Privacy, Confidentiality, and Health Research; Series; Title; Copyright; Dedication; Contents; Preface and acknowledgments; 1: Introduction; Health research as a public-interest cause; Privacy protection as a public-interest cause; Health data vulnerability; The challenges; 2: Data, biospecimens, and research; A few essential notions; The e-health revolution; Data and databases; Biospecimen collections; Public research resource platforms; Degrees of sensitivity; Data and biospecimen ownership; What is research, anyway?; 3: Privacy, confidentiality, safeguards; Privacy; Confidentiality
Dimensions
unknown
Extent
1 online resource.
File format
unknown
Form of item
online
Isbn
9781139107969
Level of compression
unknown
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
  • (OCoLC)795895647
  • (OCoLC)bopeb795895647

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